What are the established Pathfinder responsibilities?
Pathfinders are responsible for maintaining family contacts when referrals are made; Pathfinder Coordinators will maintain hospital administrative and/or other staff contacts (nurses, feeding specialists, etc.).
Pathfinders will distribute support information in person, on the phone, by mail or via e-mail correspondence, based on the needs of the family.
Pathfinders will stress the importance of interdiscplinary team care and will direct families to the American Cleft Palate-Craniofacial Association (ACPA) for team referrals. List available here.
Pathfinders will ask families about feeding issues and suggest the family consult a feeding specialist and/or nutrition counselor, when appropriate.
Pathfinders are responsible for providing a "buddy" contact or will become the "buddy" contact until a match can be made.
An Overview of the Pathfinder Outreach Network
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